Still waiting

So many people have questioned me on results. Have none yet, sorry (to top off the wait, my NY Dr. is in the hospital and no one else knows where he sent the muscle enzyme testing to find out answers). Still praying for my miracle, that something will be found on the biopsy - I hold on to this thought with great hope.

Yes, I know I am losing more weight. NO, I am not trying to and my Dr., believe me, is continuously trying to tackle this issue. I continue to try and tackle this issue. Maybe another piece to an incredibly complex puzzle, who knows?

I appreciate all your prayers and concerns. I appreciate all those who deal with me and my roller-coaster of emotions on a daily basis. Thank you!

Know I am doing fine, good days or bad, I am ok, and will continue to be. I have no other choice with 2 babies, a husband and a job. SO, no worries. I will make it through this - results or no results. Miracle or no miracle - Liz will be fine. I always seem to pull through, despite the challenge and expect to do so again, this time, and in the future.

Lots of love to you all, thanks for your continued support! As soon as I hear anything , I will post :)

Waiting

The weeks have grown a little tougher, not feeling totally great, which make the waiting for biopsy results more challenging. Have tried to remain faithful and have patience, but have become incredibly and increasingly irritable at times.

Today I was reminded that it's ok to expect God to make your miracles happen. So I boldly ask / say, without withholding at all, that I expect God to make this muscle biopsy + for something, anything that wraps up these past 4 years, that the search will be over and the diagnosis very clear. That there is no more guessing and only a concrete + pathology result that leads to peace of mind that we have found the exact problem.

As I boldly ask God, I humbly ask others to pray for this personal miracle. Seems so twisted to ask for an illness, I know, however, the illness is there - just so desperately need to know what it is and the future it holds, not just for me, but for my family, friends, doctors and everyone that has been involved.

We are facing other challenges that continue to develop and the plan of action is unclear. As soon as results are known, I will for sure post.

Thanks to you all for your inquires :)